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Caution
COH sent over a general information sheet about transplant as well as a YouTube link about what to expect https://youtu.be/xvIdkfD2jgo – the cancer version of what to expect when you’re expecting. I have another bone marrow biopsy scheduled for July 26. Nurse T said that there was a Nurse (Nurse B) that was amazing at Continue reading
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Useless
7/5 Having a picc line in my dominant arm has been quite an ordeal. I struggled dressing myself this morning before my walk and struggled doing my glucose test with my left hand. I passed out last night out of sheer exhaustion versus peaceful slumber, as I found myself in capable of getting comfortable in Continue reading
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Round 4
My left lymph node started to swell last night shortly after we got home from the fireworks. I could feel it when I turned my neck. This makes me anxious. I haven’t felt my lymph nodes swell since I was diagnosed with leukemia. It has been a long morning. Unfortunately I was not allowed to Continue reading
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Fireworks
I love fireworks. Back East it was common to see fireworks, you could drive down the LIE and just see the fireworks for all occasions. It was always beautiful to see. It doesn’t see as common here on the West Coast for fireworks to just happen at whim. Camping was a lot of fun, we Continue reading
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Heat and Rhea
Nothing spells uncomfortable quite like heat and the rhea. The chemo meds and ozempic have given my stomach a run for it’s money. I’m trying to enjoy nature. The first night was a beautiful quiet. My photo did not do it justice but the air was cool and it was silent (we’re also right next Continue reading
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Swing and a miss
4.15 mile walk today. I felt good enough this morning to have a nice long walk today. The sun and I raced home, I eeked out a win but I also think the sun let me win as I saw it wink at me in the sky. When J got home I thought I was Continue reading
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Pivot
When I hear the word “pivot” I instantly think of Ross Gellar screaming “PIVOT” in the couch scene of Friends, though now “pivot” feels different to me when I hear it. I think of my mistakes and think of my “pivot”. This cancer certain is a pivot for me. I used to work 10-12 hours Continue reading
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And so it goes…
I could make the excuse that I didn’t get my sneakers delivered on time or that it wasn’t cloudy long enough for my walk. I simply wasn’t motivated today to show up today. I got to thinking about A last night and stayed in a funk. There are friends that come and go, a lot Continue reading
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Easy Like Sunday Morning
Yesterday was dedicated to the children’s swimming meet. I stepped back from being over extended to the swim team not only because it didn’t serve me but also because I physically don’t have the energy. We got up early and was at the pool by 6:45am by the time it ended at 1:45pm I was Continue reading
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Miscalculations
The sun punked me this morning, I woke up much earlier than I wanted and couldn’t fall back asleep. These days the only alarm I have is my water alarm, and even that I sometimes pause. I headed out at 6:30 am for my walk and finally finished “Atomic Behaviors”. I’ll be honest, it took Continue reading
About Me
Hello, my name is Nina. I am a mother, wife, daughter and friend. I am lover of country music, & 80’s love ballad. I love me some karaoke! I identify as hot mess mom. I get it wrong, all the time. On the rare occasions I get it right? Even I’m shocked.
I am a working professional in the field of Compliance. I am mother two, daughter to immigrant parents, wife to a “redneck” – and proud of it, sister-in-law to the two most incredible human beings I have ever met and a niece that is just so cool but doesn’t know it.
I work too hard and play too little. I’ve always focus on the wrong thing and never quite sure if I’m ever enough. I grew up on the East Coast and was a latchkey kid in the 80’s and 90’s – I dodged the sketchy people on the walk home and tried not to end up on a milk carton.
I went to a very privileged Boarding School on the East Coast and college after that. (So yeah that’s exactly why this journal will be riddled with grammatical and spelling errors. On the days I feel good, I’ll type it out. On the days I don’t feel good it’ll be voice to text. I can not be held liable for the things Siri puts in as my “voice”. ) Graduated on a Friday and started Fleet Bank on a Saturday. I hustled my way through the midnight shift at DHL and hustled and hustled and hustled. I knew nothing except the hustle. (As I said, I’m a hot mess mom).
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