Dr. V called me at 7:30pm. This can’t be good. She spoke with Dr. G she wants me admitted to the hospital tonight. Sigh. I just got out. She wants me there for rounds in the morning. My ALT levels are too high. Per Google “AST levels above 1,000 U/L may indicate liver injury or Continue reading

Despite getting blood both Friday and Saturday I feel like absolute trash today. I have barely enough energy to get out of bed and take my meds and just want to keep sleeping and sleeping. Meds got messed up and Dr. P never called in the Prednisone 20 mg so I had to call over Continue reading

Little miss went with her Ciocia to get some clothes at the thrift store wit very strict instructions to not buy booty shorts. I’m find with the ripped jeans, even crop tops as long as you wear an undershirt. I’m getting my second unit of blood today. We only realistically had time to run one Continue reading

I often write about the bad days because it’s the bad days that I need more therapy and I need to express more but today was a day today was a great day! Firstly, Dr P agreed to appointments every other week. This saves so much more time and energy for us especially me getting Continue reading

It’s tough to answer “How are you?” – because I don’t actually know. From the pneumonia (GVHD) front, I am a million times better than I was 5 weeks ago in fact the Home Health Nurse said that my lungs sounded clear, there is mucus and coughing after a breathing treatment which is expected since Continue reading

March 2 of last year I was planning to take my children to New York and experience my “home”. Little less than 3 weeks after I started chemo. I have essentially CTRL + ALT +DEL my life for a restart. The at home breathing treatment and the medication regiment that I am on has made Continue reading

I needed a separate post about this. I couldn’t mix this with the mundane day to day of the hospitals updates. This needed its own. Dr. C He walked in with Dr. V and my eyes just were so surprised that I was seeing him. Dr. C was standing there. I filled up with emotion Continue reading

I’m currently waiting for the oncologist Dr G to make the final decision. The conclusion is they don’t really know what this is. All but 1 of the test have yielded a negative result. It’s not bacterial, viral, or fungal….All the test but 1 say it’s negative. The last test is for cancer, the pathology Continue reading

My life has always been circle, call me Frodo. I was moved from Friend E was kind enough to call her friend for me. She came to visit last night, I was on my 18th attempt at nap and she came in and asked me how I was feeling then asked me how I felt Continue reading

Since Wednesday I have been hacking up a lung and coughing up mucus into tissues then today I ran out of tissues and the Respiratory Tech says why don’t you use the suction stick instead of tissues. I swear my face…I couldn’t control it. Seriously, none of you people could a told me? No one Continue reading