Battle Hymns of a Hot Mess Mom

I often write about the bad days because it’s the bad days that I need more therapy and I need to express more but today was a day today was a great day! Firstly, Dr P agreed to appointments every other week. This saves so much more time and energy for us especially me getting up at 6:15am in the morning for labs dressing change and a 10 minute appointment with him. We’re in a holding pattern right now and will probably get another T cell transplant at the of the month or early April but for right now – we’re just waiting and I’m grateful he was able to give us a break.

Where it gets amazing is there was a laundry list of things. I really needed to get done today rather I really wanted to get done and J went along with it all!!!

He took me to the post office so I could drop off some of the cards I wrote; took me to H Mart where he went in and purchased some oxtails for me. (I grew up on oxtail soup and it’s still some thing that I find so comforting so don’t yuck my Yum.) he took me to UPS to return all the Amazon purchases that didn’t work out. And then the cream of the crap the cherry on top he took me to the pet store! Last weekend he took the children to get fish, but because my favorite fish was not available, they didn’t pick any out for me. Cherry Barbs are my favorite fish. They aren’t fancy fish I just like the way they look they’re tiny they’re red, and they just look happy to me.

Our big, goldfish, a.k.a. Big Bertha passed away yesterday. so I really wanted to replace them with my tiny fish as luck would have it Petco had 9 of them and I got them all +4 tetra fish, and a goldfish that I have named “Stinky”. J wanted to name him “Duces” after his two spots but it sounded like Poop to me. So I didn’t like it and settled on “Stinky” cause poop smells. This is as entertained as I get now, settle for my humor!

As luck would also have it Dr. V needed an earlier appointment, which obviously can’t do without J taking time off of work so it was converted to a zoom call! I did not leave my bubble. I got an email that said my license was going to be canceled if I didn’t pay my triannual fee cancer made me sort of forget that priority, but I had just enough time to pay my fee and keep my license active!!!

I was able to get a lab appointment for tomorrow at 3:30 as Mama K squeezed me in since my hemoglobin is 7.4 today and we ride that edge. Then J took me to the optometrist where like they told me my prescription would probably increase so I got a new pair of glasses and will actually be able to watch the TV from the couch without squinting. All my medicines at CVS were ready including my $2400 Vfend. And lastly, my Jasmine is coming today instead of tomorrow, so I will get a fresh pair of “Put It In Neutral” ballet nails tonight.

Today was an amazing day. I have good days. I have bad days and I have really really crappy days but to have an amazing day is a rarity an amazing day where J pretty much just goes along with the program and allows me to buy way too many fish because it just made my heart happy is a rarity. I’m enjoying my rarity!