Battle Hymns of a Hot Mess Mom

One day at a time…


Unanswered Questions

I sent Ia an email to ask about whether we would be starting this Wed (tomorrow). Ia wrote back with

I have slight confusion because the biopsy says 0.5% and now you’re saying that I’m MRD negative. Lord have mercy. The plethora of information is so incredibly helpful. It sure guides us.

Tomorrow is a regular appointment. Labs/dressing. With my specials J or C – labs and then I’m off to see Dr P. Then I go home may ask for some home hydration during pneumonia since I’m off the trial and get more sleeping meds. I feel we are at the place there I need to put in the work, eat well and exercise. (I really wanna get on that bike – but J is still holding on to there with major aggression.

Before I got sick a second time I was pushing my walker doing 4 miles. Maybe I’ll see if there is such a thing available.

The Yo-yo cha cha. I don’t know what’s going on. This up and down is also part of the whole cancer journey. Could it be possible that because the left side was so difficult to get marrow out the cancer hides in the right? Does that sound crazy? I sound f*cking crazy. My cancer is hiding from me. I’ll know more when I speak with Dr P



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About Me

Hello, my name is Nina. I am a mother, wife, daughter and friend. I am lover of country music, & 80’s love ballad. I love me some karaoke! I identify as hot mess mom. I get it wrong, all the time. On the rare occasions I get it right? Even I’m shocked.

I am a working professional in the field of Compliance. I am mother two, daughter to immigrant parents, wife to a “redneck” – and proud of it, sister-in-law to the two most incredible human beings I have ever met and a niece that is just so cool but doesn’t know it.

I work too hard and play too little. I’ve always focus on the wrong thing and never quite sure if I’m ever enough. I grew up on the East Coast and was a latchkey kid in the 80’s and 90’s – I dodged the sketchy people on the walk home and tried not to end up on a milk carton.

I went to a very privileged Boarding School on the East Coast and college after that. (So yeah that’s exactly why this journal will be riddled with grammatical and spelling errors. On the days I feel good, I’ll type it out. On the days I don’t feel good it’ll be voice to text. I can not be held liable for the things Siri puts in as my “voice”. ) Graduated on a Friday and started Fleet Bank on a Saturday. I hustled my way through the midnight shift at DHL and hustled and hustled and hustled. I knew nothing except the hustle. (As I said, I’m a hot mess mom).

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