I needed a separate post about this. I couldn’t mix this with the mundane day to day of the hospitals updates. This needed its own. Dr. C He walked in with Dr. V and my eyes just were so surprised that I was seeing him. Dr. C was standing there. I filled up with emotion Continue reading

I’m currently waiting for the oncologist Dr G to make the final decision. The conclusion is they don’t really know what this is. All but 1 of the test have yielded a negative result. It’s not bacterial, viral, or fungal….All the test but 1 say it’s negative. The last test is for cancer, the pathology Continue reading

My life has always been circle, call me Frodo. I was moved from Friend E was kind enough to call her friend for me. She came to visit last night, I was on my 18th attempt at nap and she came in and asked me how I was feeling then asked me how I felt Continue reading

Since Wednesday I have been hacking up a lung and coughing up mucus into tissues then today I ran out of tissues and the Respiratory Tech says why don’t you use the suction stick instead of tissues. I swear my face…I couldn’t control it. Seriously, none of you people could a told me? No one Continue reading

There is a huge difference between nurses that I have come to observe this year especially in the in-hospital setting. The major one I observed this time was just drawing blood. E draws a throw away syringe, a test syringe for good blood and then individually pushes them into the test tubes. T inserts the Continue reading

L woke me up for vitals at 5:30am and then started to shuffle things into my room. I groaned “We didn’t agree to this. I need to sleep.” He said he has to set up and was sorry. 7:00am They take me to OR. The bronchoscopy wasn’t happening bedside. It would be done in the Continue reading

I’m back to where it all started. Same beautiful ocean view, different floor and room, but I’m back where it began. I was ready to give Dr P a piece of my mind today. No, sir we are getting hydration at home and we are going to just do every two week appointments because this Continue reading

A year ago during President’s Day Weekend, the family and I were at this exact camp ground, different sites but also sick. At the time I thought it was the flu or bronchitis – surprise, surprise it was cancer. This time it’s pneumonia. As I use the humidifier I had J hunt two stores for. Continue reading

Apparently J and I don’t know how to read or interpret the biopsy results. 0.5% represented normal blasts that everyone has. I questioned Dr P – does this happen? Like you said DLI doesn’t work like that. He said it can. Being off of the anti rejection medication for the study may have allowed the Continue reading

I sent Ia an email to ask about whether we would be starting this Wed (tomorrow). Ia wrote back with I have slight confusion because the biopsy says 0.5% and now you’re saying that I’m MRD negative. Lord have mercy. The plethora of information is so incredibly helpful. It sure guides us. Tomorrow is a Continue reading