I got an email from the study drug clinician: “So, we just heard back from the sponsor. According to them, you do not meet the criteria to get the medication because your blasts are <5% (You are only 1.3% which is good). The team contacted Dr. A and Dr. P so they can talk to Continue reading

COH has taught me the acute need to be self-aware and self-advocate. On one part, the facility has just an obscene amount of nurses, doctors, researchers, schedules, staff and security. That’s not even including the amount of people with cancer. Firstly, that’s just a lot of people…like the parking lots are ALWAYS full. I say Continue reading

I haven’t been able to This week because I haven’t been able to open my eyes or see. Perhaps it was conjunctivitis or an allergy we switched from antibiotic drops to steroid drops to allergy drops. Either way my eyes have been swollen shut and I haven’t been able to do much of anything. To Continue reading

Echo went well so did the labs as well as the dressing change unfortunately all of the appointments led to a very late appointment with Dr. P. He noticed immediately that eye issue and ordered me some eyedrops. I guess the triage nurses recommendation of warm compress wasn’t cutting it. So I currently go through Continue reading

I knew I wouldn’t be able to sleep last night and took my Ambien but I still woke up at 3:00am to use the bathroom. I laid there until J’s alarm when off and came downstairs to make oatmeal. S makes oatmeal that is seriously undercooked and not enough water. I will need to keep Continue reading

Of course I’m afraid to die. Yes I’m not ready but because my kids aren’t adults yet. I am so proud of them. So proud of the people they are. So proud of their heart and kindness- I hope they never lose that. Will I have a chance to see them graduate high school? Fall Continue reading

I just rang J on the phone, he’s in the garage. It’s about noon and I asked him. Did you ask if the kids have eaten or are hungry. He said the kids will tell him when they’re hungry. I find myself riddled with anxiety with that answer. Aren’t you the parent? When I ask Continue reading

Contacted an attorney to see if my case has any merits. It’s very inconsistent and feels like policy is just so inconsistent also. COBRA is going to be expensive but since 2/1 they will discontinue my benefits there’s nothing I can do. I’ll need to see if this is a qualifier for J’s insurance. I’m Continue reading

I set out to accomplish only one thing today, which was look for my electric blanket so that I could have the option of watching the game tonight. Just the option. If I didn’t find the electric blanket, I wouldn’t be able to go. It would be far too cold. It took me two hours. Continue reading

J has been complaining about the laundry. So today is a day of progression where it took me an hour just to lift the baskets onto the bed. My first basket took so much exertion that I got dizzy and promptly laid on the bed. For a few minutes I have Aquaman in the background Continue reading