Battle Hymns of a Hot Mess Mom

One day at a time…


Day 0

It’s finally here…the cells have been collected and they are earmarked for me. Nurse and the Dr have to sign off on it in the morning then…this cure is mine. This cure. I’m graeful, elevated, thankful. Today started with a small shimmy to the bathroom, where I am still having some GI issues. (My adult diapers are keeping me clean and fresh) – well maybe not fresh, but at least dry. TMI

I have Nurse J today, and to commemorate today Nurse S is charge today. It’ll be nice to say hello to him considering the last time I was here on Day 0 – he was giving me chemo not my transplant. So I’ll be nice to say hello and come round circle. Truly beside Nurse T – everyone has been absolutely wonderful. The doctors and nurses are telling me to walk…get up and move. The faster I want to get out of here and be home with the kids the more I have to move and walk. So if I don’t feel awful, I’m going to walk a little bit here and there. Just to keep my body moving and healthy.

So far what I do know about the donor is that he is 58 year old male, and is a 10/10 match. I believe he’s from Europe. So get ready community, I’m going to strap on my pink leotard and be screaming “ON YOUR LEFT” soon. Actually this man guarded his life, traveled and is healthy enough to give me NEW life. I’m so grateful to him. I was only allowed to write him a letter, but I hope he will want to write me back and of course I’d love to meet him one day. I’m blessed by his gift, and wish him a lifetime of love, health and happiness.

The NP just came in I have C. Diff. Colitis – similar to what I had when I first went into for 7 + 3. It’s a bacterial infection of the colon that causes me to basically poop and poop and poop. All the nurses and PCAs have to grown when they enter my room. This is like ET and I’m the alien. This isn’t exactly what I was hoping for but it is what it is. Per Nurse J – there shouldn’t be an effect on transplant. It’s still on schedule now for 2:00pm. I’m controlling what I can control and leaving the rest to the universe.

It was closer to 3:00pm when we finally started. Pre-meds were pushed into me and I went “All the Leaves are Brown” and drifted to sleep. The transplant was different than a transfusion as it used gravity to drip into me. There was a lot of pressure on my chest that made it difficult to breathe but beyond resting and resting. I only rested.



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About Me

Hello, my name is Nina. I am a mother, wife, daughter and friend. I am lover of country music, & 80’s love ballad. I love me some karaoke! I identify as hot mess mom. I get it wrong, all the time. On the rare occasions I get it right? Even I’m shocked.

I am a working professional in the field of Compliance. I am mother two, daughter to immigrant parents, wife to a “redneck” – and proud of it, sister-in-law to the two most incredible human beings I have ever met and a niece that is just so cool but doesn’t know it.

I work too hard and play too little. I’ve always focus on the wrong thing and never quite sure if I’m ever enough. I grew up on the East Coast and was a latchkey kid in the 80’s and 90’s – I dodged the sketchy people on the walk home and tried not to end up on a milk carton.

I went to a very privileged Boarding School on the East Coast and college after that. (So yeah that’s exactly why this journal will be riddled with grammatical and spelling errors. On the days I feel good, I’ll type it out. On the days I don’t feel good it’ll be voice to text. I can not be held liable for the things Siri puts in as my “voice”. ) Graduated on a Friday and started Fleet Bank on a Saturday. I hustled my way through the midnight shift at DHL and hustled and hustled and hustled. I knew nothing except the hustle. (As I said, I’m a hot mess mom).

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