Battle Hymns of a Hot Mess Mom

Transplant coordinator called me today to go over the logistics of when I check in, so what I will be doing on Monday. I have labs then blocking. I will be doing full body radiation twice a day and the blocking is literally that. The radiation is full body and can cause severe lung damage as well as lung cancer, so last Monday I was given a CT scan so that they could make custom “blockers” that will protect my lungs during radiation. I check into the “Hope Hotel” – as I am required to stay close by during radiation for observation but it’s not being admitted into the hospital so a little different there.

I also was informed that my donor traveled to a high risk area for Zika and has sexual relations with a person that also traveled to a high risk area for Zika. To be honest I don’t really understand the risks or those implications. I asked if Zika was curable, and was told yes…I mean it’s not like I’m going to say no to the transplant. But Zika? Who knows what this really means. Obviously the donor had to be screened first – beyond that I don’t actually know.

I’m finishing up the last of washing my blankets and pillows – packing them into a bag for admission. Mostly my electronics will one keeping me from crying form boredom – that is the major factor. Besides everyone waking me up every 4 hours for vitals…the boredom was the other thing that struck me. I’m having trouble sleeping – I’m restless and anxious.