I have some jankey budget internet that I pay an arm and a leg for but 4 devices can not connect at one time. The last two days haven’t been high energy at all. I woke up this morning to peel myself out of bed to make breakfast for the children and proceeded to climb back into bed. I have labs, dressing change and infusion tomorrow – so I have to actually peel myself out of bed and leave the house.
J and I have been using words like when I’m better, when I feel better, when the cancer the gone…and I caught myself realizing that after transplant isn’t a end goal – it’s a lifelong goal to be cancer free and to take care of my body. Transplant just fixes my body’s inability to recognize cancer – but it doesn’t mean I fall back on old habits. I will need to make sure I take care of my body. Firstly with sleep. Those days of 2-3 hours of sleep are over. There is no bedtime after 10:30pm; there is nothing more important then to shut down work and to be present with family. More camping and more nature. Less stress. I need to find an outlet for my stress that is positive.
This will be a forever battle because it will require me to focus of my health and well being more. I will need to control my actions to care for myself. It’s interesting to think about living cancer free because it’s always there reminding you – remember when?

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