Battle Hymns of a Hot Mess Mom

Racing to yet another 7 am appointment. We’ve been doing this since I was discharged. J feels the need to go to work for 30 minutes and drive back to pick me up to take me to the appointment. Where is the ROI? Because every appointment- I’m late to. It’s 6:59am and I’m not where close to the appointment. This pushes my blood work and transfusions later if needed. Being late to appointments stresses me out but it doesn’t bother J. I hate being late to appointments. And my platelets were 9 from 17. So I had to stay and get my transfusions. It wasn’t too bad, 50mg of Benadryl went in but I didn’t feel as sleepy…which is also a bummer, sometimes a good nap helps pass the time. My electric blanket just delivered, as my hemoglobin drops I tend to have a harder time keeping warm and staying warm.

I took an Uber home after the transfusion, but decided not to rely on anyone else to take me to my labs. While I know driving isn’t the best idea for me…sometimes being self-reliant isn’t a bad thing either. Whether it’s stubbornness or what – I have to rely on myself as well. I drove to pick up my meds and gave myself my IV antibiotics as well as my Ozempic. Yes, I stabbed myself…did I want to? Nope. I most certainly did not want to stab myself with the needle but sometimes you gotta put your big girl diapers on and just do it.

Tomorrow is the first day of school, we always take photos on the landing of the stairs and a hot breakfast. Tomorrow will be pancakes (blueberry or bananas), scrambled eggs and maybe some bacon on the side. S asked if I would curl her hair in the morning. It’ll be a busy and fun morning tomorrow. They kids will ride to school and I’ll try and walk as much as i can to school.

The children spent the last of their summer vacation bumming around and getting boba. While I wasn’t able to take them any place this summer…we eeked out a few camping trips. It wasn’t NY like we planned, but then again cancer wasn’t planned either. Dr. P said early Sept will be the bone marrow biopsy and then we go from there. One step at a time, if I look to far ahead…I start to panic. So for now, just my feet moving. I did however get an electric blanket off of Amazon on the cheap! This will be extremely useful at flag football this coming Fall Season. I remember the bitter cold last year which I can not withstand now. So I’ll be snuggled with my electric blanket for Fall and Winter.

Kids are pretty excited and nervous so the sleep energy isn’t there yet. I hope they can fall asleep sooner rather than later. L has a lot of his friends in his class. S doesn’t. I asked the Principal if there could be a change made so that she could be with more of her friends. Cancer has made S more anxious about me and where I am, what I’m doing, does it hurt…she always has these questions. I’d like for her to relax and just take me off her mind and be a little girl with her friends.

I have to get up early myself tomorrow, hot breakfast and hair/makeup are going to be tight if I don’t get a jump on it in the morning.