Battle Hymns of a Hot Mess Mom

I get platelets and over night I drop from 25 to 9. it’s disappointing. My hemoglobin go from 7.4 to 6.2. All signs that I need the transplant but also that the chemo is working. It’s working so well that my hair is falling out again.

It actually started to get long enough to have a slight comb over but it’s starting. I even lied to myself that the hair that grew during chemo would be chemo resistant and wouldn’t fall out. That was a cute lie. I even believed it. So much so that looking at this little clump makes me sad. One step at a time. My last chemo was 8/12 – I’m recovering from the effects. During my first hospitalization my hair fell out as well around the third week. This is my second week but my cytarabine was much harsher this time.

There’s no decision made about my platelets; while I jumped up to 11 on my own it could dip back down over night and likely would. These are specialized platelets for me so could be useful to just give them to me. Waiting for a decision to be made on that. At least they feed me here at COH, I get chips and soda at the other infusion center. Salad is the better option. The decision was platelets would still be given but because of the timing of it – I now had to get the platelets much faster than normal. 50 mg of Benadryl and the race was on since post labs are done an hour after the transfusion. It makes for a very long day. A very long and exhausting day. I’m hoping tomorrows visit to the infusion center will be a quick blood test and no blood/platelets needed.