Battle Hymns of a Hot Mess Mom

One day at a time…

Roller Coaster

Platelets are not coming up as high as expected. I went from a 3 to a 15. Then today stayed at 15 as overnight my stats dropped considerably. I’m trying to get out of my own head. trying not to freak myself out. Because that’s what I do best. I’m trying hard not to google and read into this because it’s not going to do me any good by reading up on this. Got some gossip that Dr C will no longer be taking outpatients and will only be focused on inpatients. He will divide up his cases to other hematologist. While he doesn’t have great bedside manner he is the best. I wish he can hold on a little longer for me to get transplant. But this is out of my control, so it’ll be what it’ll be.

The transfusions are taking close to 6 hours now since they slow roll my platelets at 120ml and hour, an hour hydration and then another hour blood test. It’s all makes for a long day. Thankfully there’s WiFi. I have my iPad and might bring my laptop tomorrow and maybe fish but not sure how strong the WiFi will be. I have decided yet. My bag is semi packed – I have a PBJ tomorrow since it’ll be a long day. I’ll finish some shows and nap where I can. Not enough energy. Bed.

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About Me

Hello, my name is Nina. I am a mother, wife, daughter and friend. I am lover of country music, & 80’s love ballad. I love me some karaoke! I identify as hot mess mom. I get it wrong, all the time. On the rare occasions I get it right? Even I’m shocked.

I am a working professional in the field of Compliance. I am mother two, daughter to immigrant parents, wife to a “redneck” – and proud of it, sister-in-law to the two most incredible human beings I have ever met and a niece that is just so cool but doesn’t know it.

I work too hard and play too little. I’ve always focus on the wrong thing and never quite sure if I’m ever enough. I grew up on the East Coast and was a latchkey kid in the 80’s and 90’s – I dodged the sketchy people on the walk home and tried not to end up on a milk carton.

I went to a very privileged Boarding School on the East Coast and college after that. (So yeah that’s exactly why this journal will be riddled with grammatical and spelling errors. On the days I feel good, I’ll type it out. On the days I don’t feel good it’ll be voice to text. I can not be held liable for the things Siri puts in as my “voice”. ) Graduated on a Friday and started Fleet Bank on a Saturday. I hustled my way through the midnight shift at DHL and hustled and hustled and hustled. I knew nothing except the hustle. (As I said, I’m a hot mess mom).

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